PHONE CALL FROM THE DOCTOR

I received a phone call from the doctor today and to the best of my understanding here is what is going on with me.

The skull xray is normal but the bone scan showed increased uptake in the skull and lumbar (low back) region. I understand that to mean they were at higher levels in those areas. Due to the fact my skull exay was normal this decreases (but does not eminate) a bony disease of the skull. At this point, they were trying to diagnose/or eminate Pagets Disease. Due to the normal skull xray they do not feel I have that at this time.

She asked if I was having any back pain - and I stated "well, pain I associate with my surgeries - but i can say I have been going to the chiropractor more lately due to back aches" She asked in what area and I said the lower back. So I will be having an MRI done on Tuesday to investigate that further (at this point I figure might as well not leave any stone uncovered and I'd like to get most of this in under this years insurance.)

I asked her what they would be looking for in the MRI and she said a tumore or growth.

She went on to explain that aceate phosphates are found in the skin, liver and bone. (weird combination of you ask me) Anyway, this all started when they found increased levels in my liver. Well, that now appears normal but the bone phosphates are way to high. So she is recommending to rerun all that blood work the end of December and see if the levels are normal at that time, stayed the same, or increased. I asked if the MRI came back normal but the levels were still out of wack in December then what does that mean. She said we would have to continue with testing to see what is causing it.

Afterwork, I stopped by the doctor and picked up a copy of the letter she sent me plus 5 pages of the test resuls that were sent to her from other doctors who read my xrays and scans. I then faxed them to a friend of mine who is a retired radiologist in Denver. He is going to review them and get back to me with his thoughts/ideas/recommendations. I have no complaints with my doctor and feel she is covering all the bases but another opinion never hurts.

I hope this makes sence to you --- Vonda