ME

How is that for a title (ME) a blog about no one and nothing else but ME! Ok, anyway as you know I got a call about 11:30 today and they asked if I could be at the Oncologist at 1PM for paperwork and then see the specialist Dr. Huber at 1:15 so of course I said yes.

It was a pretty straightforward meeting. He said I was being referred to him becasue he is a bone and blood cancer specialist and Dr. Eid (my previous specialist) wanted him to look at the results of all the bone scans I had done and he felt I should have a bone marrow biopsy done. Dr. Hubers agreed, he said that normal bone marrow is even and flat and mine shows up on the scans as rough and patchy. (great medical terms huh)

He then proceeded to explain the procedure to me. He said the bone marrow is the soft stuff inside the bone so they will sedate me and then use a needle to go through the bone and aspirate (withdraw) the marrow. Then it will be tested and hopefully we will have some type of answer. They will do the procedure twice and it will be done once on each side of my him.

He was quite upfront about the whole thing and said "you don't show many of the signs of a blood cancer - but if it isn't that then I don't know what it is." So I asked him if this comes back as cancer it would be cancer of the blood or bone marrow correct and not bone cancer and he said yes. I asked if it is that why wouldn't it have shown up in the 18 blood tests i had done and he stated most blood cancers will not show up in a blood test. (Ok, that doesn't make sense to me but that is what he said)

He asked alot about the breast biopsies I have had done over the years and the fact I was diagnosed with Cowdens Syndrome years ago (this was when they removed the polyps from my colon) I assured him they were always tested and none were cancer.

I asked if the bone marrow test came back good what is the course of action then - and he was quite honest and said he would have me have a mammorgram to make sure no issues there and then order a CAT scan to get another scan of the bones and they would keep a very close eye on things.

He ended with saying "I know you want answers --- but yet you don't" I told him he was pretty correct on that and he ended again by asking about if i had pain, night sweats, fever, chills etc.... I answered all thosee questions and he said "well, you certainly don't present with signs of it being cancer but if it isn't I don't know at this point what we are dealing with.

There ya hae it folks - you now know as much about it as I do which is NOTHING!

time will tell,

The folks are on their way to SF tonight to stay here and I ahve to be at the hospital at 6:30 and sign it, get checked in, get my IV etc... she said the bone marrow biopsy will not start before 8am.

Love ya all,
Vonda