Oh boy, how and where to do I begin?

Well, went to the specialist today to talk to him about the Pagets Disease and was in for a bit of a surprise becasue he said "I am 99.8% sure you DO NOT have Pagets Disease!"

He then spent the next 2 hours talking with me and going over everything I have ever had done since I was born, (the back brace, the foot surgeries, colon surgeries, breast biopsies, moles removed, thyroid removed, the cancer etc....) He jotted everything down and asked a million and one questions about it all.

While doing all this and answering his questions he asked me if it was normal for my right eye to be staring off like that? I said no, but said I noticed this morning it was a "bit off" (my eye, not me...... come on tell me you at least laughed at that, I am trying to make this at least entertaining to read) anyway, so then he proceeded to ask if any family, friends, coworkers etc.. have ever said anything about it and i again said no they had not mentioned anything about the eye.

So then it was back to answering more questions....

So at this point he proceeded with the exam and at one point took out a needle and stuck it on my forhead and asked if i could feel that and I said "yes" at this point he used the same needle and started prcking at my feet and legs and I had to tell him when i felt it. Afterwhich he informed me i have very poor feeling in my legs and feet. I told him, it has always been that way with my left food do to the surgeries but have never noticed an issue with my right foot and leg. (but how often do you have someone stick you with a needle and go "can you fell that")

I talked to him about the hives and the vomitting i have had in the past and he again wrote that all down and asked numerous questions. My blood pressure was also high when they took it which I told him was unusual. I am normally right at 120/80.

I also asked him about increasing my thyroid medication because i have been so tired lately. I explain to him that i go to the car and lay down during my breaks and sleep during my lunch break. I said that the doctors keep lowering my thyroid medication but I disagree becasue i jsut get more and more tired.

He assured me not to worry and we would get to the bottom of all of this. He said" you have had a rough bunch of months" and wanted to remind me that this won't be taken care of overnight but that he would get to the bottom of it. He has 3-4 ideas of what it could be but reminded me again it needs to be taken care of one step at a time and treatment will depend on one the future tests hold.

He has me scheduled for a Dexa scan this coming Monday. He also did a ton and I do mean a ton of blood work today. After I l;eft his office and went to the lab I counted that he has 18 blood tests scheduled. I jokingly said to the lab tech "hopefully, it isn't one vial of blood for each test" to which she responded "nope, it will only be 13 vials of blood!" That is no joke, they took 13 vials of blood. All I could do was laugh, I couldn't believe it.

So after this you are probably all wondering my thoughts on this, and it is that I really like this guy and the time he took to try and figure this out. So I feel like I am finally on a path to getting some answers. Like we all wondered, he said alot of these things could all be caused by the same problem or I might even have 2 different things going on be he was confident he could get to the bottom of it and like I said he even had some ideas of what could be casueing this.

He aslso requested that I send a signed waiver of release to Brookings Hospital, Sioux Valley Hospital, and Luverne HOspital so I could have all my medical records sent to him. He was mainly concerned/curious about the bipsies or surgeries where they have removed something from me (thyroid surgery, breast biopsies, colon surgeries,) He said reading up on those could help with his diagnoses.

He talked to me about the different things it could be but I will give you the one that I understand the best and are easiest to explain.

1) He thought it could be an issue with the adrenal gland because that would expalin some of the symptoms I have and it would "throw off" the thyroid blood work which would explain why the doctors want to lower the medication when I don't want them too.

So like I said, that is just one of the possabilities. I will keep you all informed as I find out more information but I am sure I/we are in for a long wait with all that blood work to be tested and evaluated plus another test on Monday. So you add that with the holidays coming up, I have just set my mind at "I'll find something out in Jan." I don't really think it will take that long but who knows if he has time off for vacation et...

Now, if you have all really read this, congrats I am impressed. I wish i could tell you more or have a better idea for you but I don't.

Love ya all,

Vonda